COMMUNITY RESOURCES
- Juniata
River Center - providing behavioral specialist, mobil therapy and TSS services, the State College Autism School, Stepping
Stones 717-248-8540
- The Meadows/UCBH - Universal Community Behavioral Health -
providing behavioral specialist, mobil therapy and TSS services. 814-353-3151
- TIU
- Tuscarora Intermediate Unit 814-542-2501 or 717-899-7143
Words from our Parents
Terri
M. generously shared with us some of her thoughts on how 4STEP is benefiting her son, John:
"Children with Autism work very hard to improve,
maintain and learn new skills, every small step is equal to a milestone in a typical child's life and deserves to be celebrated.
If you can make learning FUN they will look forward to, and hopefully not ever realize they are working. When you accomplish
this (and Equine Therapy does accomplish this) it serves several purposes - they enjoy and get to have a childhood, they have
events to look forward to and successes to celebrate and we keep their world from getting small. Riding horses @ 4STEP
is a very important and FUN part of John's week... we all look forward to it and watching him enjoy learning and succeeding
is so rewarding to me as a Mom!"
"John struggles with sensory issues and the helmet is a major problem, he accepts it once he is up on
Pidge, but getting it on is always a challenge. Twyla suggested using one at home -- she even, generously, lent one
of the older ones to us -- we put it on and ride him around like a "horse" at home...this is helping him adjust
to the idea and accept that it must be worn. He continues to struggle with it, but he improves every week!"
"John actually threw a ball last week
-- what a good idea Twyla had -- throwing the ball down into laundry baskets. We are going to do this at home as well.
I always come away with an idea I can implement at home to encourage to help John improve his skills."
"4STEP is one of the most important parts
of TEAM JOHN -- we all enjoy coming for lessons and see improvement each and every week!"

Autism is Not the Definition of Your Child
Terri comments on an article and gives a realistic picture of what
loving a child, who has been diagnosed with autism, is like.
I
am not a fan of Oprah, but a newsletter I subscribe to sent the link to this article and it is really good. If you are
interested in some insight into the world of Autism and you have a few minutes check it out. Robert Nassef who is mentioned
in the article and the author of the newsletter I receive is a gentleman I saw at a conference I went to right after moving
to PA.
The points that
really hit me are:
"Continuous greiving process" -- that is so true, you are forever divided
with loving the child you have and greiving the child you thought you would have. It is all part of the fear for their
future.
You must find a way to maintain your sense of humor -- even if it is a bit odd sometimes
compared to others.
Hugs -- OH MY GOODNESS -- I can't tell you what they mean. I've been working with John
for YEARS -- yep YEARS on hugs (he has consistently and regularly given kisses). I'm sure he gets tired of me saying
"wrap arms around and squeeze" while I make him do it. HOWEVER -- He started hugging me MONDAY -- YEP MONDAY,
August 24th, 2009 and I got 8 hugs that night. It is now 3 days later and I have gotten so many hugs that I am losing
count -- two just this morning when I woke him up for school. Each hug seems sweeter than the last because he is doing
it over and over and showing me that it is now a skill he has and one more thing that allows him some form of communication
with the world. Plus, hugs from your baby are just awesome!!! What do I learn from this -- patience, patience,
patience and NEVER EVER, NEVER EVER give up!
"Enjoy your child more" and "do less" --
simple and yet so important, I am guilty of getting on the treadmill of therapy and treatment and never getting off, you
feel like you are fighting a WAR -- BUT this isn't a war or a race but more of a marathon and it is important to pace
yourself (I have to remind myself of this often) ... It is so important to remember that your Autistic Child is still a child.
Tough to balance your battle while allowing yourself time to just be and have fun.
I do not believe Autism is a definition of John -- he is charming, loving, sweet, kind, laid-back, non-judgemental,
honest, 'in-the-moment", fun, resiliant, athletic and he has the most sincere, easy smile I have ever seen (we
worked hard for that too, but I am rewarded each and every time he smiles and I am in a unique position of NEVER taking even
one of those smiles for granted.). He is many more wonderful things and my list of adjectives goes on and on -- My point
is John is ALL these terrific things and they define him -- he is who he is in-spite of Autism not because of it and he is fighting it with
me, we are a team, we are in this together and not against each other. John is emerging and I believe his potential
is as endless and unknown as any other child's. Don't get me wrong -- one of my favorite slogans or mantras
is "DOWN WITH AUTISM" and if I could kick it out of our lives I would, but I would never ever trade John, so if
I have to live with Autism to have John, so be it -- I am fortunate and lucky to be John's Mommy and I am extremely
proud of him and how he embraces the world each day. I know that John teaches me much more than I could ever teach him.
It
isn't all hard, tough and difficult (much of it is, I am tougher than I thought, we are exhausted and the battles rage
on), but there are also VICTORIES -- each and every smile, expression, giggle, HUG, following an instruction, playing (puzzles, starfall.com, playdough, bowling) or even, on occasion, communicating with me using words or a word is a VICTORY!!!
Enjoy your child and let your them enjoy their childhood -- very important
for Autistic children, but then again, very important for ALL children -- maybe we aren't so different after all?
If you got this far AND/OR read the article I thank you for caring enough
about us to take the time -- I didn't intend to go on and on, just thought it was a wonderful article and
wanted to share. Maybe it will brighten your day, make you smile and remind you that there is always
HOPE! I sincerely hope so. ~ Terri M.